We’ve spoken to the hospital a lot about Jess’ passing. One of the hardest things to process has been that if there was another Jess, as things stood in spring 2020 anyway, they wouldn’t treat her any differently; in most cases the treatment plan that Jess had works. Sadly, we were one of the unfortunate few..
But knowing this has made it very hard too. What positive legacy are we leaving? Making something good come of something tragic has been really important to me. And those that know me well know that when I set my mind to something, I don’t give up!
We’re still in touch with the hospital and have talked about ideas we’ve got that may help other families, both practical ideas for patients and feedback on how being part of a long and complex investigation made us feel. Whilst we work through this process to understand what changes can be made, we’re focusing all of our energy on fundraising. Fundraising plays a vital part in research, and with new research and trials happening all the time, who knows what’s round the corner in terms of medical breakthroughs.
We’re also trying to document, through this website, how we’ve coped and the type of things we’ve done. My hope here is that if anyone has stumbled across this page because they too have been through their own tragedy, they might find some inspiration on things they could do too. Visit the memory page for some ideas.